The Rosalynn Carter Institute for Caregiving offers research, training, and programming to ease the burden of caregiving. Their website has free webinars that are very helpful in explaining the dementia process, and related to other issues in caregiving.
AARP keeps abreast of new information affecting caregiving and aging. Check this website for new laws, help with estate planning, financial and legal help, as well as help planning and organizing your caregiving journey. There are many resources here to help with general caregiving issues.
AFTD is a dynamic organization bringing awareness to the issue of FTD. They operate facebook support groups, organize awareness and volunteer events, and have a very helpful website full of resources related to FTD.
UCSF is a fantastic research facility. You can go there to get tested free of charge and consult with experts in the field. They can help you find a research study to enroll your loved one in, and are generally very helpful. They have general dementia information and specific to FTD as well.
The clinic here offers medical care and counseling to individuals with FTD and families caring for them. They have followed my mother throughout her disease process and have been extremely helpful. There is access to research surrounding FTD on their site.