Caregiving Help

  • Seniorly
    • Seniorly offers a senior housing search tool based on research to deliver informed options and easy booking focused on short-term stays. 
  • National Alliance for Caregiving
    • The National Alliance for Caregiving conducts research on the impact of caregiving in order to offer solutions, including policy changes. They also have some helpful resources listed on their website.

  • The Rosalynn Carter Institute for Caregiving
    • The Rosalynn Carter Institute for Caregiving offers research, training, and programming to ease the burden of caregiving. Their website has free webinars that are very helpful in explaining the dementia process, and related to other issues in caregiving.
  • Caregiver Connect
    • Caregiver Connect has many helpful resources for a variety of chronic diseases requiring caregiving. Fact sheets, webinars, videos, and strategies for caregivers are all free. 
  • AARP Caregiving
    • AARP keeps abreast of new information affecting caregiving and aging. Check this website for new laws, help with estate planning, financial and legal help, as well as help planning and organizing your caregiving journey. There are many resources here to help with general caregiving issues.

Frontotemporal Dementia Help

  • The Association for Frontotemporal Degeneration
    • AFTD is a dynamic organization bringing awareness to the issue of FTD.  They operate facebook support groups, organize awareness and volunteer events, and have a very helpful website full of resources related to FTD. 
  • Memory and Aging Center, UCSF
    • UCSF is a fantastic research facility. You can go there to get tested free of charge and consult with experts in the field. They can help you find a research study to enroll your loved one in, and are generally very helpful. They have general dementia information and specific to FTD as well.
  • Frontotemporal Dementia Clinic at Johns Hopkins University 
    • The clinic here offers medical care and counseling to individuals with FTD and families caring for them. They have followed my mother throughout her disease process and have been extremely helpful. There is access to research surrounding FTD on their site.
  • Northwestern Cognitive Neurology & Alzheimer's Disease Center
    • Research, helpful education links, studies, and patient care resources are all here. They have a specialized focus on FTD and offer clinical trials.